Wednesday, February 13, 2019

A Trip to The Mayo Clinic

The Mayo Clinic is a world renowned hospital known for working with complicated and rare diseases. They are champions in the field of research and diagnostics. 

Over the years as I've battled chronic illness I've always wished that I could have an appointment at the Mayo Clinic. But I never had the proper insurance carrier to go there; until now.

I realized yesterday that this very well might be the time in my life when I could qualify to go. And sure enough, our insurance is within their network. Even with the closest clinic being in Scottsdale Arizona. So today I called for an appointment. There is a huge need for care for the particular condition I'm seeking care for (Autonomic Dysfunction/Dysautonomia/Postural Orthostatic Tachycardia Syndrome) so there is a long waiting list. But that's ok with me. I need some time to prepare. 

once I get my appointment I will be flying or driving out to Scottsdale for a week of extensive testing and consults. It's not going to be convenient in any way, shape, or form. In fact, there's a possibility that Leif won't even get to go with me. Which would be SUCH A BUMMER. He might be in the middle of precepting for his FNP program. I am praying that it will all fall together so that he will be able to go with me.

While there, I will also have the chance to be tested for Osteogenesis Imperfecta and a second opinion about the Behcet's disease diagnosis. It will be monumental in my life to be able to talk with specialists about all of these conditions IN ONE PLACE.

Feeling Grateful and Excited!!

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