We're Home and Recovering

Wasn't that a sweet surprise by my hubby!? If he posts on the blog it's usually because I'm tired or busy and I ask him to write a quick update. This last post from him was all from him. He knew that it would brighten my day!;) Gotta love the man! Thank you Love for updating so I don't have to give the full run-down on Caleb's surgery. Especially because I am SOOO tired tonight.

So with that said, I'll now take a minute and thank all of YOU who sent well wishes and love our way! We have felt your prayers. Caleb is doing much better then I had expected and braced myself for. Really, this just feels like Caleb's fever week. He's not very cheerful or obedient and he's self-centered. I expected him to be in severe pain and to have a lot of stress. As long as we can keep up with the IB Profin and Tylenol the pain is under control. The only occasional thing that's not like his fevers is that he chokes easier. I hope things continue to go smoothly.

The most stressful moments were the trip back home from Flagstaff. Caleb had refused his meds all day and was spitting everything out (I got a lovely face full of bright red Tylenol, NICE!) I was afraid we would have to take him back to the hospital in Kanab if we didn't get him to take it. So, I PRAYED!

Gradually the answers came. First, the thought came to buy tablet forms of the meds we needed. But he was refusing even them. Then when we got home and settled in, the most important answer came. Caleb is stubborn. He likes to think that things are his idea, and his way. So, the thought came to me to take the medicine bottle and shake it loud enough for Caleb to hear (when he's well he comes running to the sounds of vitamins or medicine because he thinks of them as a treat.) So I rattled the bottle and set it on the table and walked away. Sure enough, within a minute Caleb had come into the kitchen and brought me the bottle of IB Profin. THANK YOU Father!! I pray that he continues to take them.

So, that's the update. We're just taking it easy and hoping that things continue to go smoothly. Thanks again everyone for your well-wishes! God Bless!

From Caleb's Tonsillectomy

From Caleb's Tonsillectomy

No More Tonsils For Caleb! No More PFAPA?

UPDATE July 2011: Removing Caleb's tonsils cured his PFAPA! Amazing!

We drove 1.5 hours away today to visit with an Ear Nose and Throat specialist for 2 year old Caleb. Our boys have what is called (short version) Periodic Fever Syndrome. Some of you may have picked up on the trend. To most (including us, it feels like Caleb is always sick. This is because on a regular basis (almost like clock work) he will get either a fever, severe body aches, stomach ache, or horrible throat and mouth sores. Or he will have a combination of the four. Every month. Sometimes more then once a month. The episodes last around four days to a week. Jakob had the same episodes. Gratefully he grew out of it by the time he was 4 years old. Caleb will most likely grow out of it too. However, we just recently found out that having the child's tonsils removed sometimes helps take away the condition. If we can cure Caleb two years earlier then Jakob, we'll do it.

So anyway, we went to the specialist. The bitter/sweet thing was that Caleb is in the middle of an episode. So his throat is raw and he is sick! In the Very Beginning of the consult he told us that it would take convincing discussion to get him to remove a 2 year olds tonsils. Well, we convinced him. It really didn't take too much convincing. We had credible evidence and knowledge of what was going on and then he just looked in Caleb's throat and agreed that this is a miserable thing to let him have if there is a possible way to cure it. So, it looks like we're in for a journey in about two weeks from now. I'm not looking forward to the surgery and especially not the recovery. But I do hope it makes a big difference.

Now for the fun part. We get to drive 3 hours away to get to the hospital where the Dr. does his surgery. Living on the border of Utah and Arizona has some serious draw-backs sometimes. Our insurance will only accept Arizona doctors for special procedures. So, it's off to Flagstaff we go. Ahh, the joys! I've wanted to see Flagstaff. But this isn't quite what I expected.

So, that's the update for today!