No More Tonsils For Caleb! No More PFAPA?

UPDATE July 2011: Removing Caleb's tonsils cured his PFAPA! Amazing!

We drove 1.5 hours away today to visit with an Ear Nose and Throat specialist for 2 year old Caleb. Our boys have what is called (short version) Periodic Fever Syndrome. Some of you may have picked up on the trend. To most (including us, it feels like Caleb is always sick. This is because on a regular basis (almost like clock work) he will get either a fever, severe body aches, stomach ache, or horrible throat and mouth sores. Or he will have a combination of the four. Every month. Sometimes more then once a month. The episodes last around four days to a week. Jakob had the same episodes. Gratefully he grew out of it by the time he was 4 years old. Caleb will most likely grow out of it too. However, we just recently found out that having the child's tonsils removed sometimes helps take away the condition. If we can cure Caleb two years earlier then Jakob, we'll do it.

So anyway, we went to the specialist. The bitter/sweet thing was that Caleb is in the middle of an episode. So his throat is raw and he is sick! In the Very Beginning of the consult he told us that it would take convincing discussion to get him to remove a 2 year olds tonsils. Well, we convinced him. It really didn't take too much convincing. We had credible evidence and knowledge of what was going on and then he just looked in Caleb's throat and agreed that this is a miserable thing to let him have if there is a possible way to cure it. So, it looks like we're in for a journey in about two weeks from now. I'm not looking forward to the surgery and especially not the recovery. But I do hope it makes a big difference.

Now for the fun part. We get to drive 3 hours away to get to the hospital where the Dr. does his surgery. Living on the border of Utah and Arizona has some serious draw-backs sometimes. Our insurance will only accept Arizona doctors for special procedures. So, it's off to Flagstaff we go. Ahh, the joys! I've wanted to see Flagstaff. But this isn't quite what I expected.

So, that's the update for today!