Sunday, August 10, 2014

ADD and Autism Are Just... Hard!

We went to our new ward today for church. The people were really nice and there was an overall good feeling there the whole day. But truthfully, by the time we got home I was exhausted and in a funk. It's just hard sometimes. It's hard going to new places where no one know us and no one knows our story. Our trials and triumphs. Then again, sometimes that is Really Nice! But that's a subject for another time and another post. :)

I think we all handled the struggles at church really well. JJ refused to eat ANYTHING the entire morning before church and honestly I completely forgot to insist on him eating until we were on our way to church at 1:00 and he was insisting that he was HUNGRY! Poor guy!! Gratefully, he fell asleep 10 minutes into the meeting. Caleb made it through 40 minutes of Sacrament meeting before his little body was ready to get up and MOVE! For the last couple of weeks his struggle has been picking at any sores he has on his skin. And if they aren't sores, he will turn them in to sores. And if it's not his nose, a sore, or a freckle;  it's his belly button. Sometimes we have to cover his belly button with a band aid to prevent an infection.  Well, today he started picking during the Sacrament meeting. And when I checked him in primary he was still twisting his skin and picking at it.

Right now, We're having bedtime battles with JJ and Caleb. JJ can't sleep because he napped through church. Caleb's not sleeping because his body won't let him. So far he has been caught searching the apartment for lost money, and emptying the fridge and making himself a snack. And he acts completely unaware that these things are a problem until we are seriously angry. We've followed the same bedtime routine that we've followed forever. But within the last year there are nights when we just can't win. We'll find him doing strange things throughout the night unless we stay right with him all night. He's unpacked boxes, climbed up to shelves in closets and accidentally dumped them, and he's made all kinds of food throughout the night. Sigh... In fact, I have to stop writing so I can go take care of the current struggle. It often feels like I am Constantly on the run!

1 comment:

Harmony said...

Oh man! Crazy nights really hope you find some workable solutions and that he can move out of this phase! Just hang in there I am praying for you and enjoying the new posts.

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